My son was diagnosed with having a Congenital Nevus Does having it cause or contribute to hearing loss?
mommyin_ks asked:
He is 5 months old and this was present at birth, but today the doctor just said something about it. He has been to like three different docs and this guy is an ENT and he is the one that mentioned it. It is in the neck/head region. I just read it only affects 1% of the infants born in the US. I have suspected hearing problems since birth and he also failed his newborn hearing test. The right ear failed a hearing test but the left one didn’t. The Nevus is on the right side as well. This doctor also noticed that my son’s right eye is droopy (which I also noticed but no one will listen to me.) I guess my question is do you know if having a Nevus can contribute to hearing or seeing problems? Does anyone else have a similiar situation? Thank you!
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He is 5 months old and this was present at birth, but today the doctor just said something about it. He has been to like three different docs and this guy is an ENT and he is the one that mentioned it. It is in the neck/head region. I just read it only affects 1% of the infants born in the US. I have suspected hearing problems since birth and he also failed his newborn hearing test. The right ear failed a hearing test but the left one didn’t. The Nevus is on the right side as well. This doctor also noticed that my son’s right eye is droopy (which I also noticed but no one will listen to me.) I guess my question is do you know if having a Nevus can contribute to hearing or seeing problems? Does anyone else have a similiar situation? Thank you!
March 5th, 2009 at 3:08 pm
I have to tell you that I DONT KNOW…but I will offer some advice. I would take him to a geneticist. The reason that Im saying this is because I get the feeling that you feeling that there is something further wrong with your son. Call it mothers instinct. The Geneticist would be the one who would be able to answer these type of questions the best.
My daughter was born with Mosaic Down Syndrome, which basically means that she is part Down Syndrome and part normal. She doesnt look like she has down syndrome at all. Had it not been for the geneticist that just happened to be in the nursery when she was born it would of been years til we thought that anything was wrong with her and she would of missed all those years of special education.
General Practitioners dont see enough children with special needs to be able to diagnose everything that is out there. By example only 1% of all children with Down Syndrome are Mosaic. Most doctors will never have one in there practice and because many of them dont look the part they usually slip by undetected for years until they start having some amount of delay.